I guess…

It is what it is...to say I was bummed I had another seizure would be an understatement. I guess in the back of my head I just assumed I wouldn't have another one since the tumor was fully resected. But looking back that wasn't a realistic or logical view. Aside from the aggressive taper off the steroids (which I firmly believe was the root cause of the seizure), I still have a LOT of scar tissue on my brain...let's face it...I have to accept that I'm at a higher risk for repeat seizures than most people.

OK...thanks for letting me vent...

If there is a 'silver lining' ( )to having another seizure, it's that I now know what to expect when it happens. I guess it's pretty common for people on Keppra (anti-seizure medication) to remember their seizures (lack of a better term). I remember everything, even Karla's conversation with the 911 operator. I was sitting on the edge of our bed, watching a show on dvr. A strange sensation suddenly darted across my brain from left to right. It kinda of made me feel light headed, like I did when I received pain killer via the IV in my arm. It went away as fast as it came on...but then a few seconds later it was back, only this time the sensation was also in my finger tips. My forearms, wrists, hands, and fingers locked up. That's about the time I started running for Karla.

I got to the top of the stairs before I collapsed. I was able to shift my torso so my forearms hit first and kinda braced myself, but I still took a pretty good knot on my forehead. Karla was already half way up the stairs when I fell. I started seizing immediately when I went down. I was coherent and very aware of what was going on around on me; but I couldn't communicate or control my body. I finally allowed myself to just ride it out. The whole episode lasted around 45-60 seconds. I was completely conscious and aware (and sitting at the kitchen table) when the EMT/Paramedics got there. I was exhausted and felt like I had just run a marathon. I let them check me over but wouldn't take the ride to the hospital. As Karla mentioned in the previous post, that was the first night I didn't take a p.m. dose of steroid...the day after I finished radiation! Needless to say I am still on the steroid. I will continue through tomorrow and Monday I will stop. Hopefully this will be enough tapering

I'm excited so many people have RSVP'd for May 15th...we may have to get the back room after all (if we do we'll get a keg or two )! It will certainly be a memorable night

I hope you are able to enjoy your day; take care and be well...TB