Been a while…
Hey All...hope this finds you well
I don't know where to start...anyone still reading this blog (or FB) knows my last MRI showed no re-growth of the tumor; promising results considering we're just shy of six months since my surgery. I'm staying level-headed about it...not to high, not to low.
I've had a few seizures over the the last couple-three months. They are getting shorter in length of time but the soreness is the same. I saw my neurologist after my MRI a couple of weeks ago; he put me on another drug (Lamictal?) in addition to the other two anti-seizure med's. I really think I/we are on the right track with this.
Just got back from Indian Rocks Florida on Monday. Karla and I took a MUCH needed vacation with her two sisters and their husbands (I'm an only child and this trip showed me what its like to have brothers and sisters...thank you for caring SO much, I love you guys). We rented a townhouse overlooking a bay and had a two block walk to the beach. We did a lot of nothing...no plans or agenda, just what we all needed. My parents kept the boys and I must say they came home pretty spoiled
I guess that's what grandparents are for...Thanks Mom & Dad!
Things are looking up...it'll be October before I can drive and I'm already getting impatient. But oh well...things could always be worse.
That's all I've got for now...Take care and be well.
TB
Recent scan shows….
No re-growth thus far!!!
The Doctors say that as far as they can see there is no apparent re-growth or changes in the cavity where the tumor once was. They are attributing his recent seizure activity to after-effects from receiving radiation therapy to the brain. Travis is going to switch anti-seizure medications in hopes to become seizure free ....(for at least 3 months so he can DrIvE).
His next scan will be in three months....
Thanks again for all of your kindness as we continue the fight against cancer!
It’s a Crap Shoot…..
Medication changes are a Crap Shoot....
After the last blog post of Travis's seizure activity they increased his dose of his anti-seizure medication. That increase made him SO TIRED it was hard for him to speak and/or stay awake....so....I called up to the Doctors and they decreased that medication and put him on an additional med. The combination of these two meds should do the trick!
However, there are always side effects involved. Travis has been having 'tremors'. At first when he experienced these 'tremors' he thought it was the onset of a seizure. His lips quiver, his hands shake and his over-all 'self' is just spacey. After a few of these he realized that they were manageable. . . and they say the 'tremors' CAN go away once his body gets used to the drug....(hence the Crap-Shoot). I am also sad to report he had yet another seizure last night
which is yet another side effect when you switch medications. So we/he are just trying to get this medication situation under-control.
What works for some people doesn't work the same for another....C-R-A-P S-H-O-O-T! (words of wisdom
)
Have a Fabulous Holiday Weekend!!! We are looking forward to time with friends, family and fireworks!
Karla

